As far as eating goes, we are also making great progress. Jadon has shown a strong appetite and interest in food. He is still on IV nutrition as his primary means but is managing to eat enough that they have started weaning that down. The medical team feels that this improvement is likely due to some increase in heart function as a result of the bypass done in early June. We are praying (an welcome all others to join) particularly that he can get to the point of taking enough nutrition orally that he will not need a G-tube as was originally planned.
|Jadon playing with water during a physiotherapy session up on the Starlight Lounge patio.|
One of our current biggest challenges is Jadon's sleep... or lack thereof. He has typically been getting about 6 hours of sleep spread out throughout the night with waking periods ranging from 15 minutes to 2 hours. He is not getting as much sleep as he should, and so neither are mom and dad! We are all trying a variety of tricks but nothing has worked yet to get him to sleep more than 2 hours in a stretch.
|Jadon sleeping on his stomach for the first time in 7 weeks. He no longer has to wear his corset. Didn't help with the sleep length of quality though :-(|