Yes, Jadon is home. After slightly more than a year as a patient at Sick Kids Hospital, he came home Tuesday afternoon. We had been transitioning Jadon home over the last few days. He came home for a sleepover Thursday and spent the day Friday. He went back to the hospital in the evening for his antifungal IV medication. He spent the day Saturday and Monday at home as well. Sunday was spent at the hospital with a friend watching Jadon so that Sara and I could spend a little bit of 'us' time on Valentine's Day (the older two kids insisted we go out for lunch and leave them to care for the two siblings at home :-) )
Tuesday was the big day and he's been doing relatively well. The transition to home was in part because the night nursing had not been arranged yet. We have nursing care overnight to give Jadon his IV med, his continuous g-tube feeds and to keep an eye on him as he sleeps. The first few nights have been quite interesting as we iron out some kinks and get settled into some sort of routine. Hopefully over time things will normalize and the two of us will be able to get regular sleep. The days are busy sorting out medications and appointments and trying to get used to having a mini-hospital room set up in our living room.
All the kids are thrilled that Jadon is home. The siblings love playing with him and entertaining him as they are rewarded with one of his huge smiles! Jadon is excited to be here and has recently learned every one's name and so loves to call out for whichever sibling is not around. Jadon is scheduled to start an intensive daily rehabilitation program at Bloorview Hospital where they will focus on occupational, physio and speech therapy. This is in addition to weekly visits to Sick Kids and our local pediatrician. So, yes it's better but will still be very busy! Despite the challenges, it's wonderful to be able to be together as a family once again!