While Jadon is out of the hospital, a lot of the hospital is here at home with him! He is on continuous oxygen and nearly continuous feeds. His SATs are monitored overnight and he gets his antifungal medication through IV nightly. He has 20 medication doses daily. His PICC caps and dressings must be changed weekly using sterile procedures. He has daily appointments. He attends the SODR (Specialized Orthopdic and Developmental Rehabilitation) program at Bloorview Children's Rehab Hospital. He has occupational, physio and speech therapy. This is a daily program with breaks for Sick Kids or local Pediatrician appointments. These daily outings involve packing the oxygen tank, the feed bag and pump, the 'emergency safety bag' (contains suction supplies and machine, oxygen saturation monitor and respiratory emergency supplies, feeding tube emergency dislodgement supplies, and PICC line emergency supplies), as well as a diaper bag and oh yeah, bringing Jadon along also! We have night nursing care to monitor him overnight from 11pm - 7am. The nurse administers the IV med, maintains his night feedings, and monitors his overall health and need for suctioning. We have had to help train the nurses but things are going more smoothly now. It is an absolute Godsend having nighttime nursing support because this means that we usually get a reasonably solid night's sleep. With full days, uninterrupted sleep is so helpful.
|8 o'clock morning meds!|
|The two Littles!|