So, we are now on to the next plan. They team is talking about several different drugs that would likely help the motility of the esophagus. Whether these need to be given for a while or to perpetuity is anyone's guess at this time. There are a few different options with their pros and cons and we are waiting for their recommendation.
Meanwhile, Jadon is doing fairly well still attached to the replogle tube. He has started retching a bit during feeds once again and the team is still struggling a bit with keeping his fluid balance down. Overall he is in good spirits and we love the little fellow. Time will tell what the long-term prognosis is.
|Jadon playing with one of the therapy dogs|
|Making one of his many faces!|