Friday, 30 October 2015

Happy Gotcha Day!

It's hard to believe but Oct 29th was the one year anniversary of Jadon joining our family. 
Creative Rykauna made a little poster for Jadon
It has been a wild year with lots of medical drama but one thing is for sure....we are all head over heels in love with this boy who is medically fragile but who is a true heart warrior. He has been feeling better the past few days and engaging in lots of sensory play...including this bowl of spaghetti noodles the child life specialist made him. His mischievous grin and love of life are evident even when confined to a bed for so long.  
 Next week he will hopefully have his fundoplication dilated as per the decision made Thursday by his multi-disciplinary care team. The round table discussion had : Cardiologists (yes, three were there, general surgeon, ENT surgeon, gastroenterologist with her GI fellow , heart function nurse practitioner and her cardiac function fellow, PT, OT, Complex Care Pediatrician, Complex Care Nurse coordinator, and Steph and I. Jadon had a GI scope over a week ago but they passed the scope through the fundoplication site without dilating it in hopes that would be wasn't. The team is hoping dilating the fundoplication wrap site will improve movement of fluids from his throat to his stomach. Praying it works... complication-free.

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