Wednesday, 25 November 2015

Emotional yo-yo!

Sunday night Jadon was admitted to the cardiac critical care unit because of severe lethargy and low blood pressure.  On Monday morning after a blood transfusion and some time on a blood presser, he was doing much better.  He was followed up with several ultrasounds and x-rays and since he was doing so well, was moved up to the cardiac floor early Tuesday afternoon.  It was nice to have such a short stay in the CCCU.  

Our relief however was very short lived.  In the evening, Jadon's blood pressure was extremely low once again.  Less than 8 hours after leaving, Jadon was once again admitted into the CCCU.  This time he was put onto 2 different blood pressers and ended up on a morphine infusion due to his obvious pain and discomfort.  He has had several other diagnostic tests to help figure out what the issue is.  The telescoping of his intestine has corrected iteslf, but tonight he sits in the CCCU, lethargic and uncomfortable.  The medical team is not exactly sure as to the source of the issues, but are currently querying pancreatitis, given his pancreas enzymes are elevated.

Through this all, Jadon has been able to remain on room air, which is encouraging.  One of the tests was an echo-cardiogram (heart ultrasound).  It shows that there may be some small improvement in heart function through this all.  We will take whatever positives we can during this difficult past 2 weeks.

On a positive note, Jadon is featured on some huge monitors around the hospital as part of an advertisement. The woman in the picture is was awarded a "Smile" award and asked for Jadon to be in the photo with her. To bad he had just woken up and did not smile. ( The pic was taken in the summer when he was more fluid overloaded)

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