On one hand, Jadon was not doing well. His SATs were usually in the 60s, often dipping lower. He was often short of breath. He had had one cold after another which had necessitated delaying his surgery. He needed to get his Tetrology of Fallot repair. We were relieved when he finally went into the operating theater. On the other hand, we had been told about risk factors. We were told that while the surgeons at Sick Kids perform many TOF repairs yearly, there was always some chance of complications. It was hard to think of this wonderful brave little boy going under the knife.
Here we are, 100 days later. Jadon's surgery had many complications. Jadon spent time on the ECMO. He has been intubated 7 times (three surgeries and 4 imaging procedures). He has had countless needles, blood work, medications, x-rays, echo cardiograms, ultrasounds, pokes and prods. He has been presented on surgical rounds at least 4 times.
|Jadon with some of his 6 (and counting) Bravery Bead necklaces|
|Jadon giving eye drops to his stuffed dog!|
Until Monday, once again, we wait... for answers, for a plan. We are hoping and praying that the heart dysfunction is due to hibernating cells... and that yet another surgery can restore function. This has been a very long roller-coaster ride with many emotional ups and downs. It has been tough on Sara and I. It has been tough on our other four children. It has been tough on Jadon. It has been tough on our support network - family, friends, church members. Yet, we are able to smile and to rejoice in the Lord. Habakkuk 3:18, 19
|Still smiling! Playing with Sara's glasses!|